Adventures of Pom

I can’t remember the time when I didn’t know that having my particular disability meant that the length of my lifetime was shortened.   By shortened I mean, barring any freak accident, my lifespan will not be as long as that of an average person.  You can't actually die from of ataxia (and it is not communicable!), it is not that simple.  Premature death is due to the complications that having a base code genetic defect causes.  For example; thickening of the heart muscle eventually leading to heart failure. Because I understood this (though not in detail) from such an early age, it was and is just another fact and so this knowledge does not depress me and it is not a sensitive subject for me to talk about.   Don’t get me wrong, this in no way means that I want to die anytime soon…I’m not ready yet, I haven’t finished! However I didn’t realise that this fact affects those around me as well (is that narcissistic?).   Well my slow decline into de...

I pick social life every time and that's never gonna change.   I am aware that the following blog entry has a rather fractured nature but I have not edited that as I feel it provides a literal example of my thought patterns when combatting the tiredness that living with ataxia brings. Ataxia does not affect mental capacity and it is often the case that I want to do more but my body either can’t or won’t do what it’s told.   Some days it’s only willpower that gets me through.   Use the force!! If anyone follows my blog (:-D), you might’ve noticed that I did not publish an entry last week and there is a very simple reason for this = I didn’t write one!! I didn’t write one due to a sudden and severe attack of Inertia. Inertia is defined as the resistance of any physical object to any change in its state of motion; this includes changes to its speed, direction or state of rest. It is the tendency of objects to keep moving in a straight line at constant velocity. Th...