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Showing posts from September, 2016

Coping: How I deal with a relentless degenerative condition and chronic pain.

As I write this I am highly aware that some of my coping mechanisms and indeed, my actions can seem more than ‘a little odd’ to others.   Highlighted to me recently by a friend who, when I tried to explain my obsession with my Google Calendar to ( GC blog entrylink ), laughed at me and told me it was obsessive compulsive ( OCD link ) behaviour. DISCLAIMER - I want to make it clear that the coping mechanisms I describe in this blog entry are just my preferred ways of coping. I am not saying my way is the only way as everybody is unique.   Respect others.   Always. Yes, I do express (a lot!) of behaviour that can be described as OCD.   And do you know what? I like it. My behaviour traits strengthen me and help me cope with the all the issues that I need to deal with.   My actions may seem strange to others but, to be quite frank, I don’t care! Accept me as I am…or don’t. Anyway, I digress.   The best advice I can give to anybody dealing with...

Thank you - An open letter to Trafalgar Studios London following their extraordinary act of kindness

Hi I am writing (to all the email addresses I have for you guys!) following my visit to see the matinee of ‘The Spoils’ on Saturday 13 th August. The play was fantastic, the cast were brilliant, your theatre is lovely and your staff were incredible.   I had a wonderful day, thank you. I wanted to take the time to say a proper thank you to everyone involved in making that day happen for me, so here goes..! I have a disability called Friedreich’s Ataxia.   It is a genetic, degenerative condition affecting my nervous system so not only does it suck most of the time, it restricts everything I do and as an added bonus it means that my life clock is counting down at a much faster rate than the average person!   Because of this, some of the things I value very much are, the times that I can spend with friends (like Lucy, my companion that day), having days out, seeing shows and meeting lovely people (particularly if some of them are uber-talented actors!). Th...