Life At The Moment
I wrote this as a guest article for Ataxia UK volunteer magazine, however due to my own weird personal circumstances at the time, I requested that they did not use it and it has been sitting in my files ever since. Upon rereading it I actually quite like it and I have decided to publish it on my blog, I hope you like it too and perhaps it will raise a little bit of awareness. Being born in the 80's meant that being misdiagnosed was common due to lack of genome testing and specialist knowledge. I went through several incorrect diagnosis' before I was given the correct one at age 7. Friedreich's Ataxia (FA). Having FA means that every day is a constant battle between my brain and my physical body. My brain is a motivated, energetic geek who just wants a good life. My body is a tired, weak, depressed stoner with constant brain fog. My personal war between brain and body has been waging for just over 42 years and I am pleased to say that despite it getting increasingly diff...